Guidelines, Frameworks, and Trainings on Lived Experience and Caregiver Engagement in Research
Common Threads With Specific Considerations for Specific Subpopulations
Bibliographic Data
Centre for Addiction and Mental HealthIndividuals with lived and living experience of health challenges and family members/caregivers are experts of their experience and are key knowledge keepers in research about their needs [1].Increasingly, they are engaged as advisors, coresearchers, or equal partners in research projects.In these roles, they advise, collaborate on, co-produce, co-create, or lead many aspects of research projects.Possible contributions span the research lifecycle, from priority setting to knowledge mobilisation.While increasingly common across the health research sector, engagement may be particularly important in mental health and substance use health research as a response to the injustices, stigma, oppression, and coercive treatment specific to this area of care [2].Engagement guidelines, frameworks, and trainings are required, helping to ensure that engagement is accessible, psychologically safe, and ethical for those engaged, while placing them in roles as partners to the research that is generated.
Lived experience · MEDLINE · Mental health · Qualitative research · Family Caregiving in Mental Illness · Identity, Memory, and Therapy · Mental Health and Patient Involvement
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