A PRO-cision Medicine Methods Toolkit to Address the Challenges of Personalizing Cancer Care Using Patient-Reported Outcomes
Introduction to the Supplement
Bibliographic Data
| ID | 9104809 |
|---|---|
| Authors | Claire Snyder (0000-0001-8952-4561, Johns Hopkins School of Medicine, corresponding author), Michael Brundage (0000-0002-5104-0497, Queen’s Cancer Research Institute, Kingston, ON, Canada), Yonaira M Rivera (0000-0002-5041-5250, Johns Hopkins Bloomberg School of Public Health), Albert W Wu (0000-0001-6189-7120, Johns Hopkins School of Medicine, corresponding author) |
| Year | 2019 |
| Volume | 57 |
| Issue | Suppl 1 |
| Pages | S1-S7 |
| Publication date | 2019-05-01 |
| Peer Reviewed | Yes |
| Open Access | No |
| Type | ARTICLE |
| Venue | Medical Care (JOURNAL) |
| Journal identifiers | ISSN: 0025-7079 • E-ISSN: 1537-1948 |
| Publisher | Ovid Technologies (Wolters Kluwer Health) (PUBLISHER) |
| DOI | 10.1097/mlr.0000000000001089 |
| PMID | 30985589 |
| OpenAlex | W2937086749 |
| Language | EN |
| Citations received | 4 |
| References cited | 46 |
Patients are increasingly being asked to complete standardized, validated questionnaires with regard to their symptoms, functioning, and well-being [ie, patient-reported outcomes (PROs)] as part of routine care. These PROs can be used to inform patients’ care and management, which we refer to as “PRO-cision Medicine.” For PRO-cision Medicine to be most effective, clinicians and patients need to be able to understand what the PRO scores mean and how to act on the PRO results. The papers in this supplement to Medical Care describe various methods that have been used to address these issues. Specifically, the supplement includes 14 papers: 6 describe different methods for interpreting PROs and 8 describe how different PRO systems have addressed interpreting PRO scores and/or acting on PRO results. As such, this “Methods Toolkit” can inform clinicians and researchers aiming to implement routine PRO reporting into clinical practice by providing methodological fundamentals and real-world examples to promote personalized patient care
Bioinformatics · Medical education · MEDLINE · Patient care · Personalized medicine · Precision medicine · Cancer survivorship and care · Childhood Cancer Survivors' Quality of Life · Family Support in Illness · Medicine · Nursing
EORTC QLQ-C30 general population normative data for Italy by sex, age and health condition
Knowledge translation resources to support the use of quality of life assessment tools for the care of older adults living at home and their family caregivers
Using Autoregressive Integrated Moving Average (Arima) Modelling to Forecast Symptom Complexity in an Ambulatory Oncology Clinic
The use of patient-reported outcome and experience measures for health policy purposes
Measuring Quality of Life in Routine Oncology Practice Improves Communication and Patient Well-Being
Health-Related Quality-of-Life Assessments and Patient-Physician Communication
Assessing the use of health-related quality of life measures in the routine clinical care of lung-transplant patients
Oncologists' use of quality of life information
Research on health-related quality of life
Communicating patient-reported outcome scores using graphic formats
The applications of PROs in clinical practice
A knowledge translation challenge
Making a picture worth a thousand numbers
A Decade in Review
Interpreting and Acting on the PRO Scores From the Patient-reported Outcomes for Personalized Treatment and Care (PROMPT-Care) eHealth System
Can Methods Developed for Interpreting Group-level Patient-reported Outcome Data be Applied to Individual Patient Management
Applying PRO Reference Values to Communicate Clinically Relevant Information at the Point-of-care
Symptom Care at Home
Engaging Patients and Clinicians in Online Reporting of Adverse Effects During Chemotherapy for Cancer
Turning Feed-forward and Feedback Processes on Patient-reported Data into Intelligent Action and Informed Decision-making
Interpreting Patient-reported Outcome Scores for Clinical Research and Practice
Options for the Interpretation of and Recommendations for Acting on Different PROMs in Daily Clinical Practice Using KLIK
A Case Management System for Integrating Patient-reported Outcome Assessment in Clinical Practice
PRO-Bookmarking to Estimate Clinical Thresholds for Patient-reported Symptoms and Function
Interpreting and Acting on PRO Results in Clinical Practice
Using Stakeholder Engagement to Overcome Barriers to Implementing Patient-reported Outcomes (PROs) in Cancer Care Delivery
A Rasch Measurement Theory Approach to Improve the Interpretation of Patient-reported Outcomes
| Unique citing works | 4 |
|---|---|
| Citations per year | 0,8 |
| Citation span | 2021 - 2023 (3) |
| Citation velocity | historical |
| Highly cited | No |
| Citation types | Neutral: 4 |