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Co‐designing for quality

Creating a user‐driven tool to improve quality in youth mental health services

Bibliographic Data

ID19507534
AuthorsChristina Hackett (0000-0002-0844-3434, Health Policy McMaster University Hamilton ON Canada, corresponding author), Gillian Mulvale (0000-0003-0546-6910, DeGroote School of Business McMaster University Hamilton ON Canada), Ashleigh Miatello (0000-0002-1254-8837, Health Policy McMaster University Hamilton ON Canada)
Year2018
Volume21
Issue6
Pages1013-1023
Publication date2018-12-01
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueHealth Expectations (JOURNAL)
Journal identifiersISSN: 1369-6513 • E-ISSN: 1369-7625
PublisherWiley (PUBLISHER • GB)
DOI10.1111/hex.12694
PMID29707865
OpenAlexW2800544011
LanguageEN
Citations received25
References cited28

BACKGROUND: Although high quality mental health care for children and youth is a goal of many health systems, little is known about the dimensions of quality mental health care from users' perspectives. We engaged young people, caregivers and service providers to share experiences, which shed light on quality dimensions for youth mental health care. METHODS: Using experience-based co-design, we collected qualitative data from young people aged 16-24 with a mental disorder (n = 19), identified caregivers (n = 12) and service providers (n = 14) about their experiences with respect to youth mental health services. Experience data were collected using multiple approaches including interviews, a suite of online and smartphone applications (n = 22), and a co-design event (n = 16) and analysed to extract touch points. These touch points were used to prioritize and co-design a user-driven prototype of a questionnaire to provide feedback to service providers. FINDINGS: Young people, caregiver and service provider reports of service experiences were used to identify aspects of care quality at eight mental health service contact points: Access to mental health care; Transfer to/from hospital; Intake into hospital; Services provided; Assessment and treatment; Treatment environment; and Caregiver involvement in care. In some cases, low quality care was harmful to users and their caregivers. Young people co-designed a prototype of a user-driven feedback questionnaire to improve quality of service experiences that was supported by service providers and caregivers at the co-design event. CONCLUSION: By using EBCD to capture in-depth data regarding experiences of young people, their caregivers and service providers, study participants have begun to establish a baseline for acceptable quality of mental health care for young people

Business · Health care · Mental health · Psychiatry · Service provider · Digital Mental Health Interventions · Focus Groups and Qualitative Methods · Medicine · Mental Health and Patient Involvement · Nursing · Psychology

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Unique citing works25
Citations per year3.13
Citation span2018 - 2026 (9)
Citation velocitycurrent
Highly citedNo
Citation typesNeutral: 25

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